THE STORY OF ONE FAMILY'S JOURNEY WITH TYPE 1 DIABETES AND CELIAC DISEASE.
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Wednesday, July 31, 2013

Day 3 - 2013 JDRF Children's Congress

Checkout.

Breakfast at 7.

Bus to the "The Hill".

Day 3 was jam packed with meetings with our legislators, a photo op with Vice President Biden, a Senate Hearing, and then a flight to Orlando.

I lived in the DC area for quite a long time, but I never actually visited the Senate and House of Representatives buildings. When Sugar and I participate in advocacy work at our state level, it's a short jaunt from one building to the next -- there's just a courtyard in between.

But getting between both sides in DC, required a cab ride! This was quite exciting for Sugar, as she hadn't ever experienced a cab ride before. I'm pretty sure we could have spent the day hailing a cab from one side to the next, and she would have thought it was as exciting as a day at an amusement park. Alas, hailing cabs wasn't what we were there to do, and so it was time to get down to business.

In the order of our meetings...

First up, Senator Flake.
Followed by Congressman Gosar.
And, finally, a meeting with Senator McCain's staffer.


Then we were whisked off through the underground tunnels to meet the rest of our group for a picture with Vice President Biden...

Photo courtesy of Camera 1.
Sugar is in the third row; 3rd kiddo in front of the girl wearing an orange sweater.
The VP is hanging with the suits, wearing a purple tie.
No time for lunch...we were off to a Senate Hearing where we would share in the sentiment of testimonies to Congress...pleading our case as to why continued research funding for Type 1 Diabetes is so important. You can see all the testimonies HERE.

From there, it was off to the airport...and time to transition from #JDRFcc13 to #CWDFFL13!

But not until I tell you all about our adventure with Hallie and Sweets first. Stay tuned!

Further JDRF Children's Congress Reading from CHB:
You've Got Mail -- Finding out Sugar was selected to be a 2013 Delegate.
Media Blitz -- Media coverage leading up to JDRF Children's Congress.
14 Units -- The sinking realization that your child's life-sustaining insulin is in a fridge 3 hours away.
JDRF CC Day 1

JDRF CC Day 2

JDRF CC Day 3


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4 comments:

  1. Hey Everyone at candyhearts!
    My name is Rebecca, I am an editorial intern for Walgreens 'Diabetes and You' magazine, and I wanted to share with you a link to the online version of the most recent issue of our award-winning magazine. Our material is user friendly and helpful for those with diabetes and their loved ones. Click here or pick up your free copy at your local Walgreens.

    http://www.diabetesdigest.com/epubs/WalgQ313/

    This issue features gourmet, vegetarian recipes from the Culinary Institute of America, including the Stuffed Eggplant Parcels with Red Chile Salsa on the cover, as well as Zucchini-Mushroom Griddlecakes and Chilled Beet and Fennel Soup.

    The feature article is on Golden Globe- and Emmy- nominated actress Elizabeth Perkins, who is probably best known for her role as Celia Hodes in the Showtime series “Weeds.” When Elizabeth was in the middle of shooting the first season of “Weeds” eight years ago, she suddenly found herself on the other side of the camera: as director of her new life with type 1 diabetes. Elizabeth recently co-produced and starred in a documentary called “Strength in Numbers,” which focuses on the people who support family or friends who have diabetes. Our article from the Joslin Diabetes Center in Boston, “Caregivers: Key Members of your Diabetes Team,” also focuses on the important theme of helping people with diabetes get the support they need.

    To learn more about Walgreens Diabetes & You, or to see previous issues online, go to walgreens.com/diabetesandyou

    ReplyDelete
  2. How did the meetings go - were all supportive? Hope so!

    ReplyDelete
  3. Hi everyone,

    It's Rebecca- just trying to spread the word about our free magazine, ‘Diabetes and You’, which features all kinds of helpful material for those with diabetes and their loved ones. Below is a link to our new video about Walgreens Diabetes & You filmed at the Joslin Diabetes Center in Boston:

    www.youtube.com/watch?v=H3SyTtmncPc
    Additionally, please click on the provided link to be directed to the most recent issue of Walgreens ‘Diabetes & You’:
    walgreensdiabetes.com

    Thank you for watching.

    Best,
    The team at ‘Diabetes & You’

    ReplyDelete

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While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.