THE STORY OF ONE FAMILY'S JOURNEY WITH TYPE 1 DIABETES AND CELIAC DISEASE.
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Showing posts with label diabetes hands foundation. Show all posts
Showing posts with label diabetes hands foundation. Show all posts

Thursday, January 17, 2013

Holy Generosity, Batman!

Last week I got a call from our local Starlight Children's Foundation letting us know that Sugar had been selected to participate in a Batman "experience" with Gotham City Motors and The Wayne Foundation.

A Batman "experience"?

Yes.

As in a tour of a Batcave replica AND an opportunity to ride in a real, live BATMOBILE!!!  (Complete with a sliding bookcase and Batpoles!!!)



I KNOW!!!!  I almost couldn't contain my excitement either!

But it gets better.  The day before our visit, she received a hand-delivered letter congratulating her for her strength and courage in the face of obstacles. She was also permitted to invite 25 guests, arrived by limo, AND walked away with a Batkey of her very own...one day she'll be able to bring her key back to drive the Batmobile herself!!!


Oh...but there's more...

The Wayne Foundation is committed to using their Batmobile in support of non-profit organizations.  Not only do they provide this amazing experience for children with a chronic diagnosis, but they also make a donation to the charity sponsoring the child (in our case, it was Starlight).  In addition, they make a second donation to another charity of the family's choosing.  We chose the Diabetes Hands Foundation, specifically because of their Big Blue Test initiative which provides life-saving insulin and education to people who would otherwise be unable to access it.  Mike Lawson was able to join the event on behalf of DHF, and we had a great time!


I am always touched by the hearts of kind people.  The idea that someone has worked so hard for so long to create such a fascinating experience for families like ours literally reaches inside the core of my soul.  It is there that I find myself at a loss of words, because I can't seem to form a sentence that expresses my gratitude.  "Thank you" seems so mellow at times like these.


You can check out more pictures from our Batexperience HERE.

PS -- On a side note, the SPEED Channel was there filming.  The original Batmobile is being auctioned this weekend at Barrett-Jackson. I'm not sure when it's going to air, but stay tuned and I'll be sure to share the details as they surface! 

(Also: Keep an eye on Lot 3013 which goes to the auction block around 1 pm on Saturday, 1/19/13, to benefit JDRF!)

SPEED Channel filming in progress.  Photo courtesy of Gotham City Motors.

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Monday, October 15, 2012

Big Blue Test 2012



If a mother looked you in the eye and pleaded for you to use the access you have to technology to help her access the insulin necessary to keep her child alive...

If a young adult confided in you about fearing a life of complications, because they don't have enough insulin to help to avoid them...

If a disaster victim explained they had lost everything, and has since been unable to gather enough supplies to manage their blood sugars...

If someone told you that *YOU* could do something to help...
Would you do it?

You, who may or may not have diabetes.
You, who may or may not have a connection to diabetes.
You, who may or may not have stumbled upon this blog post
by nature of a random Internet cosmic collision.

If you are reading this post, 
then YOU have the means and capability to make a major impact in a global problem.

It won't cost you a dime.

And hardly any of your time.

Right here.
Right now.

YOU.  CAN.  HELP!

Do the Big Blue Test today.
And tomorrow.
And the next day.
And tell everyone you know to do it as well.
And tell them to do it tomorrow.
And the next day.
And tell them to tell everyone they know to do it as well...

See how this works?

We can make a difference.

So let's do it.



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While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.