THE STORY OF ONE FAMILY'S JOURNEY WITH TYPE 1 DIABETES AND CELIAC DISEASE.
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Saturday, November 3, 2012

Just Sayin'

A post about a conversation with your doctor

Sugar needed to make a trip to an urgent care a few months ago...it went a little something like this:

"So, she has diabetes?"

"Yes."

"Does she need insulin?"

"Yes.  She was diagnosed with Type 1 Diabetes shortly after her 2nd birthday."

"So how long has she needed insulin?"

"Well...just like everyone else, she's needed insulin her entire life.  Unfortunately her body stopped producing it somewhere around the age of 2.  Since then, she's needed an external source of insulin, and that's why she wears an insulin pump."

"So how often does she need to wear her pump?"

"All the time."

"Well, she had some glucose in her urine so she's obviously not getting enough insulin or not wearing her pump enough.  You'd better be careful, because keeping her uncontrolled like that can cause a lot of problems later."

"Okay.  Thanks.  Unfortunately diabetes can't be controlled.  The best we can do is to manage it.  Controlling it isn't an option.  For the past 5 or 6 years, her A1c has consistently fallen on the low end of the target range for her age group, so it seems we're doing an okay job of managing it for now."

"Well, all I'm saying is that glucose showed up in her urine today, and that's a problem."

Thanks, Doctor.  You might consider learning a thing or two about the diagnosis before you start lecturing me.

Just sayin'.
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8 comments:

  1. Umm, taking a very deep breath.
    Sighing, a lot.

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  2. Funny how we have learned to just smile even though we REALLY want to go ape shit :)

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  3. Haha, I took Kortnie to the Urgent Care awhile back, she ended up with a UTI. The doctor told me she had too much glucose in her urine and to get in touch with the endo. I at that time did not realize that it is normal for a T1 to have glucose in the urine. I contacted the endo asking him about it, kind of freaked myself out. Stupid Urgent Care Doc, got me all freaked out for nothing!

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  4. ugh, doctors that don't know a darn thing...met a few of them myself. you handled it better than i did!

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  5. I had a similar conversation with an urgent care nurse, except she had type 2 diabetes. I was able to retain my manners enough to find out that the medical care she was receiving was less than ideal (duh!) and was able to refer her to my endo.

    ReplyDelete

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While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.