That I understand when you say that you're tired from a long night of diabetes.
I understand when your heart skips a beat, waiting for the meter to tick down.
I understand what it's like when your brain lingers, trying to consider all the variables and figure out the numbers racing through your mind.
I understand what it's like to feel as if the rest of the world goes on with their lives, while you feel stuck behind.
I understand that you look and listen for signs of breathing as soon as you walk into the bedroom.
I understand the frustration that comes when well meaning people are constantly telling you how your child can be cured.
I understand the feeling of victory when you see 24 hours of target numbers.
I understand the thrill of ordinary when you see your child participating in everyday normalcy.
I understand.
And I just wanted you to know.
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THE STORY OF ONE FAMILY'S JOURNEY WITH TYPE 1 DIABETES AND CELIAC DISEASE.
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While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.
Thanks. Last night I checked my boy at 00:30, and then at 2:40, and then at 5:40, and finally this morning at 7:30. Gave him a total of 32 grams of carbohydrates (we miscalculated the basal dose for the night). But this morning he's with other kids, jumping and playing and swimming and just being the three years old that he is.
ReplyDeleteI just wanted YOU to know I heart you.
ReplyDeleteI want to let you know, this is an awesome post Wendy. Thanks for the bright reassuring message for a Monday morning. You rock, indeed!
ReplyDeleteI understand that YOU.ARE.AMAZING. Great post to start out the week dear one.
ReplyDeleteLove you, Wendy! This is a fantastic post!
ReplyDeleteGreat post my friend! Love you! Thinking of you on this bitter-sweet day! Happy Dia-versary Sugar! Love you too sweet one!
ReplyDeletelove this post Wendy...you are amazing :o)
ReplyDeleteGreat post! It reminds me of the "I Want You to Know" post I wrote but with a different spin. A spin that is wonderful and so comforting after dealing with some totally whacked out numbers for days. It's so nice to know that although it feels crazy, someone else gets it. :) awesome!
ReplyDelete<3 Thanks Wendy <3
ReplyDeleteAnd I just want you to know how much I adore you, Miss Candy Hearty pants. Lots and lots. You are the cherry on my triple scoop ice cream cone!!!
ReplyDeleteYep, needed that today! ;) Sending understanding back you way with tons of love!!
ReplyDeleteLove it, thank you for the reminder.
ReplyDeleteLOVE YOU!!!!
ReplyDeleteLove this! Love that I can come to the DOC and be surrounded by others who understand :)
ReplyDeletethank you Wendy it's so great to know we're not alone :)
ReplyDeleteI am so, so glad you understand Wendy. Love you!
ReplyDeleteThanks for being there and understanding. All of us choose to be a part of this amazing online community instead of being alone with D. Thanks for the reminder that we are not alone. ((Hug)) You are not alone either Wendy...we are here for you!!!
ReplyDeleteOh, I love it! I always think that...is she breathing? I check before I check her. Scary, isn't it? I've never said it before? Oh, girl-thank you! I know how you feel too. : ) Hugs!
ReplyDeleteme too. thanks. :)
ReplyDelete