THE STORY OF ONE FAMILY'S JOURNEY WITH TYPE 1 DIABETES AND CELIAC DISEASE.
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Monday, June 24, 2013

I've said all I have to say.


For Y E A R S, I have pounded away at this keyboard, literally pouring my heart into each sentence.  I started blogging in 2007, and can't tell you how many crying, snot-nosed, passionate posts I've written from the depths of my (candy) heart -- many of which have published; but some that have not.  I have stared at a blank screen, purging the overload of emotions, thoughts, and information through these fingertips for a countless number of hours.

There were times a thought would pop into my brain, and I'd stop whatever I was doing to "jot" it down...only to glance up and find two hours had passed, and nap time was over.  How many nightly sugar checks ended up transitioning into a blog post I had never intended?

I have no idea.

Oddly, writing here wasn't enough.  I couldn't get it all out.  There was more...so much more...more hoopla floating inside my head.

Countless guest posts...a column with Animas...FB groups...social media projects...

And, then...

One day...

It stopped.

I don't know when, exactly.

Something just changed on the inside.

It was as if I had said all I had to say about our life with T1D.

Just like that.

Done.

Then my phone rang around 11pm last night.

On the other end was a nervous voice trying to figure out how to operate a glucometer.

Earlier in the day, I responded to a call for help from a local mother who faced an emergency situation several states away. She would need to leave her child in the care of a loved one who hadn't yet been fully trained to manage her newly diagnosed toddler, and was asking for someone to help by being "on call" in the event she couldn't be immediately available.

I PM'd her my phone number...we exchanged a few messages...and that was that.

Well, that was that until my phone rang, anyway.  We worked through the glucometer error, figured out a correction, and managed a little snafu from a shot earlier in the evening. Then we went back to our respective lives, and off to bed. I fell asleep thinking that I remember being new at this as if it were just yesterday.

This morning, I woke up pondering the 80 people who would be diagnosed today.

Many, if not all, of them/their loved ones will take to the Internet in search of more information about their diagnosis.

What will they find?

Misinformation? Horror stories? Snake oil cures?

Or...will they find our story?

YOUR story?

Will they find fear or hope?

Tell your story, my friends.

And...when you think your story doesn't matter...or you think your story has written its final chapter...or you think the world is just too vast for your words to matter...

Stop for a moment to think of them.

Eighty today.

Eighty tomorrow.

The next day...

I just realized that I have so much more to say.

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4 comments:

  1. Your blog was one of the first I came across when my now 4 year old was diagnosed over 2 years ago. I read for hour's while sitting in the hospital almost all of your posts in the two years prior to my daughter's diagnosis. Your blog gave me hope. Once I got home I had messaged you and we became friends on Facebook and then through Yahoo Groups. Honestly I don't know what I would have done had I not found your blog. I'm glad that you started blogging. I needed it more than anything when Sarah was diagnosed. Thank you for keeping it up...we need you

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  2. and we need to hear what you have to say too! I found your blog early on in our journey too and it gave me so much more than you will ever know. Thank you for sharing your words, for we all know that they definitely come from your heart! xoxo

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  3. Wendy,
    You have been such a blessing to me and to our family. We connected shortly after Becca's diagnosis on Yahoo groups, then came your blog and Facebook. There are days that the connection to other parents and families are so critical, especially for us, being a military family away from all of our family. Becca identifies with Sugar, and asks about her often. Thank you from the bottom of my heart, for always being there.

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  4. Whew - so glad you didn't decide to stop blogging! You scared me!

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While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.