THE STORY OF ONE FAMILY'S JOURNEY WITH TYPE 1 DIABETES AND CELIAC DISEASE.
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Tuesday, September 27, 2011

The Party That Just Keeps Going!

Ah, yes.

The Birthday Party.

I have this one down pat.

Unless, of course, there's unexpected pizza and piles of candy bars everywhere.  Oh, and I've been known to crash slumber parties...but, for the most part, birthday celebrations seem to go off without a hitch over here.

So, when the invite showed up for a pool party, I figured pffftttt....I got this, BABAY!

Except I didn't know if they would be serving food.

Just one minor detail to figure out.

When I RSVP'd, I asked.  She hadn't completely decided on the menu.  I'd check back.  Good plan.

Then I forgot.

And then, when I remembered, she missed the call.

And I forgot again.

And then it was the morning of the party, so I had to wing it.

Hmmm...POOL PARTY...

Making an educated guess based on all my years of birthday party experience, I decided there would most likely be 1 of 2 options:

1) The grill -- hotdogs, hamburgers, etc.

Or

2) Pizza.

So I packed up the car...


And I packed up my purse....


I figured that I'd bring along a gluten-free hamburger bun -- it could double as a bun for grilled cuisine or a crust for pizza.  Thinking along those lines, I also brought some pizza sauce and cheese, completely planning to snag a sheet of tinfoil before tossing it in the oven for 20 minutes, if necessary.

See?

I'm prepared!

And....................they served a party sub.

Plus, the pool wasn't at a house stocked with tinfoil and an oven.  

It was at a community pool.

Plaster smile to face, deep breath, ignore palpitations, quickly come up with Plan C, and press on.

I had all three Rosebuds, and they were off swimming in the blink of an eye.  

Splash. Splash. Kick. Kick. Test. Test.

Then swim some more.

I was feeling pretty confident when she got out for lunch a few hours later, and her meter showed a beautiful 135 ( #thankyouverymuch)!

I improvised lunch, and we made due with some chips, veggies, fruit...and a regular orange soda.

I bolused for about half the carbs, planning to keep her pump on while she was out of the water, yet anticipating more swimming without the pump later.

If only I could be a Pancreas.

Before she could finish her fruit and chips, it was time for a WATER BALLOON FIGHT!!!!!!

Yippee!!!!

I hovered.  Standing close,  I held the soda can and kept handing it to her to take a few random sips every chance I had.  That soda, after all, was the bulk of her bolus. 

She kept playing.

And I kept soda-hovering.

Then she took the soda, and walked away...


Except....



Yeah.

So much for my confidence.

I ended up chasing post exercise lows all night.

With temp basal reductions and juice, I managed to keep her in the 80's through the night.

At her morning school snack around 10 am, she was 140.

HOLLA!

Then 2 hours later, I got a call from the nurse to let me know that she had been in the office for almost an hour, and was still sitting in the 70's - 80's after 90 (Um, yeah -- *NINETY*) carbs.

Ah, lovely.

Stinkin' depleted liver glycogen stores.

Anyhoo...it worked out.

After crawling over 200, a bolus that turned out to be too hefty in an attempt to prevent a massive spike, and chasing insulin for another couple hours...she has now settled, once again, at 135 with ZERO active insulin on board (IOB).

It was a splendid 24 hours, and we have now come full circle.

Sending a child with diabetes and celiac to a pool party is no easy task...but I'm honored to be her mother, and I wouldn't trade those smiles for anything.

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13 comments:

  1. "D" sure knows how to crash a party! Good thing you were able to soda hover. :D

    Looks like she had fun, kudos to you for working your behind off to make it happen. D-Mom's seriously rock!!!

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  2. Ahhhh, it's nice to see someone else who has to pack their whole stinking car just to go to an afternoon birthday party... ;)
    Sure is a lot of work but you're a great momma doing it in the name of her having fun. xoxo

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  3. I am always in awe of our kids, who endure the physical aspects of days like these. Our kids are amazing, aren't they?!

    And so are you!!!! I know first-hand how this affected you. Been there, done that. High-five, my friend!!!!

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  4. You're amazeballs. My new word. Seriously. And that strut with the soda? Love!

    If you ever come here ill have GF pizza waiting!;)

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  5. oh my wendy...you and her are rock stars, what an event - and yet somehow with all your amazing talents it turned out be just right. I definitely believe our kiddos numbers/iob...etc becomes a 6th sense for us d mamas!
    Have a wonderful day, hopefully without 90 extra grams of carbs necessary!

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  6. you ROCKED it Wendy!! great job handling everything on the fly and handling those lows afterwards...high fives all around!!

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  7. NINETY? As in 9 ... O?!? Wow! D was thowin some serious shizz your way! But you rocked it!! And so did she! :)

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  8. DUDE...you ROCKED it. I bow to your pancreatic prowess. xo

    P.S. "Soda-hovering" should be a new word.

    ReplyDelete
  9. Take THAT pool party insanity!!
    And I totally agree that the smiles are worth it...just wish 'it' didn't take so much sometimes!! ;)

    ReplyDelete

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While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.