Thursday, March 24, 2011
And it caught me completely off guard.
I mean...I knew we'd talk about this one day...but I didn't expect to be last night.
The adhesive on Sugar's Dexcom sensor (a.k.a her continuous glucose monitor) was wearing out. I was looking at it before bed, and trying to decide if it would make it through another night.
Out of the blue she said that it was bothering her...and then she started to cry.
Spring is in full swing here and summer is coming fast. The long sleeved wardrobe has been packed away, and the drawers are full of bright colors, spring dresses, and short sleeved clothes. She began wearing Dexcom in December (under long sleeves), and we've found her arm to be the most accurate placement for the sensor.
Can you see where this is going?
"MOMMY...they keep asking what Dexcom is, and I just don't know what to say."
"They were laughing at me."
"It beeped during class and disturbed everyone. I was so embarrassed."
Oh, my heart ached.
Her tears were so big.
And then it was me who just didn't know what to say. All I could do was hold her and tell her that we'll figure it out.
We agreed that she'd keep it in until morning so I could double check the basal changes I had been tweaking for the past few nights.
Then we took it out this morning.
And I don't know when we'll be putting it in again.
If technology enhances her life, I'll go to the ends of the earth to make it accessible to her and learn whatever I have to learn to manage it.
But if it becomes a burden....
Then I guess I won't.
P.S. You can read a heartwarming follow up HERE.
While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.