I swear I feel like that concept could eat me alive sometimes. It's everywhere...repeated over and over by diabetes advocacy organizations...woven through blogs and other social media venues...pleas for financial support to expedite A CURE.
People have waited entire lifetimes for their CURE.
Science has been pursuing A CURE for decades....BILLIONS of dollars have been poured into science labs all over the globe...theories have been pondered, disproven, and sent back to the drawing board. Mice have benefited from cure technologies that can't be translated to humans.
All of that time. All of those resources. Yet my daughter still has type 1 diabetes. By the time I figure out how to get the words out of my brain and into your computer screen, another family will have gotten the news that their child has type 1 diabetes too. By the time I hit enter to publish this post, another child will have died because of type 1 diabetes.
That being said, I've been pondering -- REALLY PONDERING -- why a cure for type 1 diabetes continues to escape reality. I mean...if it could be bought, then collectively we have most definitely paid the price. I have no idea the final dollar amount we'd end up with if we added together every single dime that has been poured into a cure for type 1 diabetes. Same goes for time. People whose lives have been affected by this disease have certainly waited their turn while other causes have been pushed to the front of the line.
What if the cure CAN'T come out of science alone?
No one can prove why my daughter's pancreas stopped producing insulin. Even still, her type 1 diabetes remains evident. By the same token, science hasn't been able to prove there isn't a God, but that doesn't mean He ceases to exist.
What if there's a bigger plan that involves more than just science?
What if it means reaching deep down inside our Candy Hearts and finding a way to provide insulin -- the most basic need for a person with T1D -- for people who cannot access it?
What if it means praying intently for THEIR needs instead of solely for a cure?
What if it means sacrifice?
I know this might seem hard to believe, but do you realize that there are T1 Parents who have no idea what Twitter, Facebook or a blog is? They aren't able to Google symptoms, insulin management, or technology options. Parents who probably haven't ever clicked a computer keyboard in their entire lives. Parents who can't fund raise for a cure, because there are no cure-focused organizations advocating for them and, besides, they're hardly surviving with the limited resources they've scraped together. Right now, as you read this, there are parents being forced to choose between life-saving insulin for one child and food or shelter for the rest of the family. They must travel for hours by foot before reaching an overcrowded clinic once or twice a month to obtain limited amounts of insulin in order to keep their child alive long enough to make the journey all over again.
They love their child no less than we love ours.
I am NOT suggesting that you stop supporting the cure-focused organizations you believe in. I do, however, feel that our community has a responsibility to consider the global crisis that exists, and stretch farther than we ever have before to find a way to address it.
NOT just on November 14th.
INSULIN WAS DISCOVERED ALMOST 100 YEARS AGO!!!!
How is it possible that people -- CHILDREN -- are dying every single day because they cannot access it? If they can't access insulin now -- nearly 100 years after the fact -- how on earth will they EVER be able to access the "cure" should one ever show up?
Each of us must be ready and willing to respond to this catastrophe...ESPECIALLY if we are asking people to reach into their pockets to support our fund raising efforts for a cure. How can we POSSIBLY ask someone to, for example, sacrifice their daily coffee and contribute to our cure-focused initiatives instead; if we aren't willing to sacrifice our own to allow someone else's child to SURVIVE?
Science has had it's turn.
A CURE will never be possible without the hand of God as a part of it. We may forever be "just around the corner" or "5 - 10 years away" if we continue to put all of our faith, time, and resources into science labs that repeatedly cut God out of the equation.
It's time for humanity to prevail.
While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.