Let's all just take a minute to regroup.
WHEW! Apparently I missed quite a firestorm over the past few days!!! The reaction to this letter seems to have ignited some passionate emotions. To be honest, I'm glad I missed it.
So I'm not going to comment on it...the firestorm, that is.
Instead I'd like to add my 2 cents about what wasn't in that letter.
For me, it all comes down to this statement:
We have a responsibility and an opportunity to help them live better, healthier, longer, and less stressful lives. And so one of the big changes that we’re undergoing is focusing on improving the lives of people living with diabetes on a day-to-day basis.Okay.
Sounds good to me.
I'm all for it!
I'd like to know how (and if) this *international* organization plans to help people with Type 1 Diabetes who are living in conditions that make it nearly impossible to access insulin. I'd venture to say that (and correct me if I'm wrong) assisting these individuals to access the insulin they need to survive would go a long way towards "improving their life".
So I'm curious...DOES JDRF have any programs in place? HAVE they done anything to financially support organizations such as Life For A Child? I honestly don't know, but I'd hate to think that anyone was cherry picking about whose life they're committed to improving...and whose they aren't. I mean all this chatter about "cures" and "improved technology" is awesome...but...insulin has been around for nearly 100 years. If these people can't access the basic life sustaining tool to keep them alive, then how on earth would they ever be able to benefit from the rest?
And, if there's not....consider this post as my hand being raised to volunteer for the opportunity. I'll figure out a way to bridge the gap. I'll do anything I can to support an effort to assist the global community. You can count on me.
Hey...we all have special skills. Some dive into research, others have a knack for communicating with legislators, still others may be a power house when it comes to cooperate fundraising. Well, I take care of people. It's my passion. That's just what I do.
So I'm bringing it to the floor and asking the DOC.
I'm not on a witch hunt. I'd like to gather some facts about this particular issue. I found this list on my local chapter's website, but it doesn't seem to answer what I'm looking for. I've e-mailed the national JDRF office, but haven't gotten a response yet. Hey, and Mr. Brewer, if you stumble upon this post, I'd love some input straight from you!
It's my goal to come away from this post with lots of warm, fuzzy stories about this awesome organization and their efforts to contribute to the solution of an ever-growing crisis that exists within the global Type 1 Community.
So speak up! I'm listening :)
PS -- If you have some input, but would rather not leave a comment, please e-mail me at email@example.com.
From My Candy Heart To Yours,