tag:blogger.com,1999:blog-2565266366481013224.post8893236158541149208..comments2023-10-07T06:38:20.148-07:00Comments on Candy Hearts: A Family's Journey With Type 1 Diabetes and Celiac Disease: I Have A(nother) Question!Anonymoushttp://www.blogger.com/profile/16704298016041843194noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-2565266366481013224.post-45841741095630734042011-02-04T09:52:16.549-07:002011-02-04T09:52:16.549-07:00Great post and a GREAT question. I would love to k...Great post and a GREAT question. I would love to know the answer, too. Thank you so much for asking this very important question that has been troubling my heart as well. I will be very interested to see what the response is...Tonyahttps://www.blogger.com/profile/15577989556674851078noreply@blogger.comtag:blogger.com,1999:blog-2565266366481013224.post-77624458617274522162011-02-04T09:13:25.534-07:002011-02-04T09:13:25.534-07:00I thought about that when I wrote my "Cure&qu...I thought about that when I wrote my "Cure" post yesterday. I pointed out that 88 years ago there was a mother (many mothers AND fathers) that considered insulin their cure. Well the fact of the matter is.... there are still mothers and fathers CURRENTLY in these other countries that consider it a cure. Because it would mean saving the life of their children. Children that without it will and ARE dying.<br /><br />So sad.<br /><br />GREAT post, Wendy! I agree that the focus to these people is just as important as our current quest for a "cure".Donnahttps://www.blogger.com/profile/07096733957672343933noreply@blogger.comtag:blogger.com,1999:blog-2565266366481013224.post-975584858350827362011-02-04T08:55:55.527-07:002011-02-04T08:55:55.527-07:00That a girl Wendy changing the world to better T1&...That a girl Wendy changing the world to better T1's everywhere. GOOD LUCK!! and I'm very interested in what you find. I wish that I have some kind of information for you or could offer some sort of help.<br /><br />Unfortunately I don't think that this is only a T1 and JDRF issue I think it affects all people and children with any disease in 3rd world countries. If there is no profit being made the companies just don't care to take the time and look at the issue. It really is disgusting!! and it needs to change!! NOWNicolehttps://www.blogger.com/profile/07233907890324278905noreply@blogger.comtag:blogger.com,1999:blog-2565266366481013224.post-82617724235995515422011-02-04T08:05:10.395-07:002011-02-04T08:05:10.395-07:00I too am very interested in knowing if something w...I too am very interested in knowing if something will be done to help those without access to the most basic things. I'm all for everyone having access to better technologies but honestly, I can't focus on that while knowing others don't get insulin. It seems so wrong.Sysyhttp://thegirlsguidetodiabetes.comnoreply@blogger.comtag:blogger.com,1999:blog-2565266366481013224.post-71953416036547134582011-02-04T04:11:59.162-07:002011-02-04T04:11:59.162-07:00This very issue has been on my mind and in my hear...This very issue has been on my mind and in my heart lately. I was also thinking about PIH on this front. I don't know if they have a program to get out life-sustaining insulin to third world countries. I think they are more infection control-related. I have never thought of JDRF in the capacity in which you write about here, but now I am.<br /><br />Please update us when you get a response. It better not be *crickets*...even if they don't do anything on that front, some response is better than ignoring your inquiry.Anonymoushttps://www.blogger.com/profile/00895126112651188056noreply@blogger.comtag:blogger.com,1999:blog-2565266366481013224.post-73024857615348351202011-02-04T00:37:49.960-07:002011-02-04T00:37:49.960-07:00That's a great question Wendy.
With my own ...That's a great question Wendy. <br /><br />With my own daughter included as part of the "global" T1 community I know firsthand that some of the technological advancements being pushed forward by JDRF funding will do absolutely nothing for the T1 children here in my country (Ghana, W. Africa). I once approached JDRF about allowing Alexandra to be an international delegate at the JDRF Congress. They told me that they have international delegates, but only from JDRF "affiliates." I took that to mean a "significant fund raising entity within the country." Ghanaians hardly have money for insulin, so forget about fundraising for the JDRF. <br /><br />Life for a Child is a brilliant concept, but too narrow in scope. There are 54 countries within the African continent, only about a dozen are included in their program. And the fact is (yes, sad fact) the majority of children with T1 in sub-Saharan Africa will die within their first year. I believe that JDRF could do so much more.Barbarahttps://www.blogger.com/profile/12600174510787328234noreply@blogger.comtag:blogger.com,1999:blog-2565266366481013224.post-30598828808214355172011-02-04T00:25:19.023-07:002011-02-04T00:25:19.023-07:00I missed the firestorm too, but reading everyone&#...I missed the firestorm too, but reading everyone's comments about it sure has opened my eyes to some issues I wasn't aware of or really hadn't thought about. I'm learning so much from the DOC.Deannahttps://www.blogger.com/profile/06006891861697098305noreply@blogger.com