THE STORY OF ONE FAMILY'S JOURNEY WITH TYPE 1 DIABETES AND CELIAC DISEASE.
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Wednesday, May 22, 2013

End of School...Start of School...Repeat...


It's the end of the school year here...which always means it's time to gear up for the next school year. I just sent off this email, and thought I'd post it, just in case it makes life easier for you to copy, paste, and tweak it to fit your needs.

Hey...I'm always interested in finding ways to makes life easier.

(For more helpful tips and information about how we manage Sugar at school, click HERE.)


Hello!

It's that time of year again.  The end of one school year means it's time to begin preparing for the task of sending {Sugar} to school with both diabetes and celiac again next year.  {Sugar} has matured quite a bit over the years, and is now able to be more of an active participant in her self-care.  She still doesn't possess the critical-thinking and decision-making skills that are necessary to insure her safety and well-being, but this past school year we've definitely seen her confidence soar in both areas of medical management. 

Prior to the 1st day of school next year, we will need to sit down to discuss her 504 accommodations, develop a routine for visits to the Health Office, and clarify any concerns/questions.  In order to meet these goals, there are a few bits of information I'll need when we meet:

  • Lunch Time
  • Recess Time(s)
  • P.E. Time(s)
  • Routine for classroom parties (time of day, types of foods typically offered, frequency of parties.)
I've compiled some resources that may be helpful for school staff to better understand both Type 1 Diabetes and Celiac Disease.  Please feel free to share these resources with anyone who will be interacting with {Sugar} throughout the school day:

Type 1 Diabetes

Type 1 Diabetes in School - Juvenile Diabetes Research Foundation (JDRF)
Safe at School - American Diabetes Association (ADA)
Helping the Student with Diabetes Succeed -- National Diabetes Education Program via the CDC


Celiac

National Foundation for Celiac Awareness (NFCA)
Letter to Educators from the National Foundation for Celiac Awareness
Celiac Disease Awareness Campaign via the NIH

I hope these resources will be helpful in better understanding the medical issues {Sugar} lives with.  As her parents, it is our goal to help her succeed, despite the challenges.  We believe we have a responsibility to educate school personnel, and advocate for her throughout her education experiences.  We are always available to answer questions or address concerns, and want to maintain an open dialog at all times. 

I'd also like to mention that Nurse {C} and {Sugar} have a solid history of working together to effectively manage both diabetes and celiac in the school setting.  Nurse {C} is an outstanding resource to {Name of School}, and I am confident in her ability to troubleshoot, problem solve, and address any issues that may arise.  Nurse {B} is also very knowledgeable and capable of helping however necessary to insure {Sugar's} well-being.  I consider this amazing team of school nurses to be one of the most consistent attributes to {Sugar's}success at school thus far. 

Please let me know how I can be of assistance in getting her 504 meeting scheduled.

We are looking forward to a healthy, happy 4th Grade year, and hope everyone has a wonderful summer!


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3 comments:

  1. Wow, how times have changed since the photocopied-from-a-magazine-with-the-blanks-filled-in papers that my mother used to send me to school with on the first day! Those note pretty much said that I have diabetes, and outlined the signs and treatments for low blood sugar -- that's it.

    Of course, after a few years I was either too ashamed or too proud to hand those notes to my teachers).

    Progress is good.

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  2. WOW! love this! Thanks for sharing =)

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  3. This is so wonderful and helpful for those of us that one day soon will be sending our little ones off to school. Thanks for sharing it.

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P.S. (Moderation has been enabled due to mega-spamming sugar cubes.)

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While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.