THE STORY OF ONE FAMILY'S JOURNEY WITH TYPE 1 DIABETES AND CELIAC DISEASE.
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Tuesday, February 5, 2013

You've Got Mail!

She was 480 this morning.

I mean...not this morning when she woke up. She was 480 at school, before PE.

I was in my PJ's, contemplating a bowl of oatmeal for breakfast while pondering dinner. I worked last night, have some emails to return, and an Animas post to write...basically I was just getting my day figured out when the phone rang.

Throw on jeans, tuck hair behind ears, add a little blush and a dab of lip gloss...I'm seriously getting to old to make myself look "spontaneously fresh" first thing in the morning. Anyway, I just got home from changing her site and filling her pump up with new insulin.

And I'm reminded, once again, that insulin is NOT a cure.

But back to the mailbox...

We applied -- for the FOURTH time -- to attend the 2013 JDRF Children's Congress this summer. Okay, technically she was a few measly days shy of the 4-year-old age requirement when we applied in 2007, but whatever.  

2007 -- "Thank you for applying."
2009 -- "Thank you for applying."
2011 -- "Thank you for applying."

Which brings us to 2013.

I debated applying over and over in my mind. One day, I was gung-ho, and the next I wondered if it would be better to put it off another couple years. It's been harder to deal with rejection with each passing year, and I honestly just wasn't sure if either of us were up for it right now. I wavered long enough that I was left with three days to make a final decision.

Then Hurricane Sandy hit, forcing JDRF to change the deadline.

Which, basically, gave me more time to oscillate as I watched the horrible after effects of Sandy unfold in the media, while trying to escape the political climate of the 2012 Presidential Election.

Before I knew it, the deadline extension was looming, and I couldn't stagger any longer.

Either apply or don't, Wendy.  That's all there is to it.

Period.

So...we sat down together and drafted a letter.  We talked about the election and the types of powerful decisions that are made in Washington DC.  We talked about where insulin technology has been and where it's going.  We talked about the relationship between Celiac and Type 1 Diabetes.  Then we filed our application, and agreed that, no matter what, we'll keep our heads held high.

The automated email reply said we should hear confirmation by "early January 2013".

January came...and January went.

Almost.

One day late last week, I sent an email inquiring about the notification letters.  The reply informed me that our letter was being mailed soon, mentioned something about the possibility of a phone call, and apologized that more information couldn't be provided.

A call?

That's curious.

Then I read this post by Moira after it popped up on my FB newsfeed yesterday.

The letters were really on their way.

I happened to be outside when the mailman arrived.  I walked over to see if he had filled our mailbox, and that's when I saw the blue letter return address peeking out from beneath a circular of store ads.  He handed me our mail, and I picked it out immediately.

It was heavier than a single sheet of paper.

I held it up to the light.

Something was different.

I'm very familiar with the JDRF logo, and could tell something about the logo on one of the pages was different.


I handed our pile of mail back to the mailman, and told him my husband would collect it when he got home from work.

He stared at me like I was nuts, but I wanted Mr. Rose to check it out to see what he thought before sitting her down to open it...


PS  (She'll always be "Sugar" here...even though you know her real name now!)

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18 comments:

  1. Can't wait to meet you guys and for our sweet ones to experience Children's Congress together! #committedtoacure

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  2. Congrats! That is very neat. I thought about applying but just didn't get around to it, it would have been our first year applying anyways. So here is my question and the real reason I was hesitant to apply...do they pay for you to go or do you have to raise the funds yourself? I never could find a clear answer on all of that. Are you guys doing CWD again this year? You will have a busy summer!

    ReplyDelete
    Replies
    1. Your travel, meals, and accommodations are provided for the event. If you wanted to come early/stay longer, you are responsible for any additional travel expenses.

      We're still unsure about FFL this year...the events overlap, and there's always the issue of getting time off from work!

      Delete
  3. AWESOME!!! FINALLY!!!! I have thought about applying also, but....never got around to it either. -Sigh- Congrats!!

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  4. So glad you never gave up! Congratulations Sugar!

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  5. This = AWESOME. And YAY!
    So proud of you guys!

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  6. It's like opening a long-awaited college acceptance letter, except with the innocence of a child and a purpose which is more altruistic. I'm so excited for you guys! Congratulations!

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  7. Congratulations! I know your family will represent us all well.

    So great that you captured it on video...totally made me cry!

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  8. Congrats!!! I know you guys are going to have a great time and represent us all well in DC!!! CC is an amazing experience and one you and Sugar will never forget!!!

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  9. YAY!!! Congrats Sugar! I love the look on her face when she realizes she's going. :)

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  10. Yahoo!!! So excited to know you & Sugar will be representing us in D.C.!!!

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  11. How did I miss this??? How very exciting!!!!!! I am so very happy for your family - you will represent us all very well. Im actually giddy that for you. We will try again in two years and again after that and again. Can't wait to read all about it - pictures pictures pictures!!

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P.S. (Moderation has been enabled due to mega-spamming sugar cubes.)

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While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.