THE STORY OF ONE FAMILY'S JOURNEY WITH TYPE 1 DIABETES AND CELIAC DISEASE.
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Monday, August 9, 2010

TIME TO SEND DIABETES TO SCHOOL!


Will you hit the snooze button, please?
I need 5 more minutes.
At least.

We've been out of town for several weeks (more on that later).  I feel like I'm behind the ball with school preparations this year.  I left it all at home.  I've been intentionally dealing with as little as possible "diabetes stuff" all summer...school was about the farthest thing from my mind when we got up close and personal with a few black bears and loads of buffalo...while we were cruising the famous Going To The Sun Road at Glacier National Park...when we were spending HOURS circling the National Bison Range...when we were boating with loved ones on Flathead Lake...when we were playing on the lake shore with my mom and the dog...when we were just hanging out and enjoying the beautiful Montana weather....

Then we came home.  And it was all still here...just waiting...lurking in the background.  First thing last Monday morning (before the suitcases were unpacked), we headed to the school...a meeting date followed...then the 504 revisions...who has time to recover from vacation when diabetes needs to go to school??????

I posted on Facebook when we were headed to our 504 Meeting.

And guess what!?!?!?!?!?!?  I'm not alone!!!!!  Comments, other status updates, private messages, e-mails...from left to right, I was quickly reminded it's THAT time of year again, and everyone else is trying to get ready too.

To be honest, this is the FOURTH year that we've gone through this.

Yes.

I said FOURTH.

Once for preschool, and twice for kindergarten (I opted to hold her back a year, because she has a summer birthday).

That brings us to right now.

First grade.

Sooooooo, I should be an old pro, right?

Pffffffffft....HA HA HA HA HA HA HA HA HA!!!!  YEAH RIGHT!

I have to admit that it's easier the 4th time around.  But I'm still nervous.  I'm still afraid I'll forget to send in something important.  I'm still anxious about how a daily routine will be established with her new schedule.  I'm still freaked out about troubleshooting the inevitable pump setting changes.  I'm still scared out of my mind that she'll have the worst low EVer, and I won't be there to catch it.

I dunno if all that stuff ever goes away.

But I do know that, recently, I've had tons of requests for help.

There was a time that I was a mom looking for direction.  When I was lost, there were other moms who had gone before me, and they came out of the woodwork to help me get our act together.

Friends, we pave the road for each other.

And for the 40 who are diagnosed tomorrow...and the next day...and the next....

Time to pay it forward.

So, what bases do WE cover when it's time to send the BIG D to school?

Simply click on the 504 tab at the top of the page to check out the plan we use. Feel free to copy and paste it....then tweak it to your Candy Heart's content!  If you come up with any helpful revisions or have something to add, I'd appreciate it if you would send them my way (candyheartsblog@gmail.com)!

By the way, TODAY was Sugar's 1st day of the 1st grade....


How did it go, you ask?



Stellar :)

(That was for you, Heidi!)
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8 comments:

  1. LOVE.LOVE.LOVE your new Cyber-Home Wendy. I'm going to check out the 504 plan...becoming a follower and will update my blog-roll with your new address!!! xoxo

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  2. Hey Wendy...I just read through the 504 plan and it looks great. Do you include something for lock-down situations in there somewhere? I did not see it. I am just curious b/c I had some serious issues with the management of those situations in Joe's school and had to really go to bat for his safety.

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  3. Looks good Mrs. Candy Heart :)
    I agree that we need to pay it forward. I know I am far behind in knowledge as I crawl up to my 2nd d aversary in 2 months. But I have greatly appreciated all the help I have gathered and maybe, just maybe, I picked up a thing or two helpful enough to share along the way :)

    Congrats on the new space :)

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  4. Thanks so much for this post! We have a few weeks left of summer break but the ominous 504 lurks in the back of my brain and I sit to try to write one out and I've got nothing, don't even know where to start. I do have the ADA safe at school binder so that is a little help but I will be using some of what you have in your 504.

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  5. This comment has been removed by the author.

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  6. Thanks Guys...

    Good point about the lockdown, Reyna!!!! SEE!!! This is why us D-Moms have GOT to stick together :)

    Sugar doesn't keep separate supplies at the school. Everything is in her "sugar box" (the term we coined for whatever is carrying all of her D gear). She has a small backpack that fits easily inside her regular backpack. Anyway, she wears is whenever she leaves the classroom.

    I've been verbally assured from her nurse that meeting Sugar's needs during a lock down wouldn't be an issue, but....it's not in writing....hmmmm......

    Something to think about!

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  7. Welcome to your new home! It looks great!

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  8. Hey Wendy...our dilemma was not only about Joe having "access" to supplies during a lockdown, but also a "trained" adult who would help him out in treating a low etc...and a so called "plan" like check a blood sugar at the beginning of a lock-down and every 2 hours (if the number was with-in range) and what to do with a low blood sugar. The school was very adament that no one but the school nurse would be trained in "D"...but obviously with these little guys they would need a little guidance in their care in a lockdown situation. And, I realize that there is a 0.0001% chance that this would happen... but it could.

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P.S. (Moderation has been enabled due to mega-spamming sugar cubes.)

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While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.