THE STORY OF ONE FAMILY'S JOURNEY WITH TYPE 1 DIABETES AND CELIAC DISEASE.
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Thursday, August 23, 2012

Challenge.


She carved out a little space between the desk and her bed to place an empty box against the wall.  Then she found a baby blanket from the toy box, and gently placed it over top.  Her special doll came with an extra outfit, so she spent some time folding each piece of clothing with great precision before stacking them beside her doll's make-shift bed.  Next, she found a comb and mirror, along with a few overly-used hair accessories to round out the space she had created. 

Then she stepped back, and declared with great pride "My American Girl Doll has her very own bedroom!"  Except it wasn't a "real" American Girl Doll.  It was a doll about the same size on clearance from Target.  And the empty box she used for a bed was the box her doll came in.

She decided that she and her doll were twins, because they're both so fashionable!  (Yes, I realize the resemblance is uncanny.)

Sugar had received a few gift cards for her birthday -- $65.00 total.  She wanted to share the joy with her sisters, so she gave everyone a $20 spending limit.  At first, I wanted to stop her...but then I realized it was her money, and if sharing it with her sisters was important to her, I needed to let her make that choice.  So, I stood in the aisles, watching them go back and forth about how best to spend the gift cards to make sure everyone was included.  At one point Sugar could see how badly Tiara wanted a different doll, so she almost gave up her share completely when they found these clearance dolls in damaged boxes on the bottom shelf.  After an hour, they had devised a plan that included everyone, and all three girls were ecstatic about their respective new toys!

Tiara recognized her sister's generous heart and was determined to show Sugar that she would take great care of the special gift she had received.  She spent half a day putting together that special spot for her special doll, and when her masterpiece was complete, she could hardly wait to show her little friend.  

I promptly arranged a playdate...

"That's not a REAL American Girl, and that's not a bed...it's a box!"  "I have a REAL bed AND the high chair AND the wardrobe AND lots of other REAL furniture for MY doll.  In fact, I need ANOTHER wardrobe, because MY REAL American Girl has WAY too many clothes."  "MY American Girl and I have lots of pairs of matching pajamas and WE wear the SAME THING every night."   "MY American Girl..."

"STOP IT!  You stop that right now!!!!!!!" 

I could feel myself shaking.  I looked at my daughter who sat slumped in disappointment with tears filling her eyes...

"What you're doing is called bragging, and it's not very nice.  If you girls want to play here, you're going to have to use kind words and actions towards each other.  Tiara's doll is very special, and she wants to play with you.  Instead of complaining about all the things you don't have to play with here, why don't you go to the playroom to see if you can find something to make your doll a bed too."

And then I walked away.

It's not her fault that her parents don't need to pay for insulin, and test strips, and gluten-free food.  It's not her fault that her parents don't have hefty co-pays for specialist visits.  It's not her fault that Tiara's mom had to quit a good paying job, because she couldn't find childcare for her diabetic older sister.  It's not her fault that Tiara's dad took a significant pay cut in order to take a job that would provide access to better health insurance.  It's not her fault the housing market crumbled or that Tiara's hood microwave, oven, dishwasher, kitchen sink, air conditioner (twice!), bathroom vents, toilets, and ice maker all needed repair within 6 months of each other.  It's not her fault the family mini van died on the way home from dropping her sister off at diabetes camp (which, by the way, cost Tiara's family $700.)  It's not her fault the school district increased the preschool tuition by 100%, and began demanding payment for all day kindergarten at the same time...

It's not her fault.

But it's not Tiara's fault either. 

It's just life.

Period.

They're happy with garage sale Christmas gifts and hand me down clothes.  They're perfectly content never to have participated in a costly extra-curricular activity.  They don't complain when they can't buy school lunches or participate in expensive school fundraisers, and they don't whine every time we go to store, because their parents can't buy them something new everyday. 

If I had to put my finger on the biggest parenting challenges I face, this would one of them:  Teaching my girls gratitude in a high-tech materialistic culture.  Teaching my children that "stuff" doesn't define their self-worth, and friendship means more than a competition about who has the fanciest toys. 

As for the other two parenting challenges for today's prompt, I guess I'd have to go with learning how to balance each family members needs...and...taking care of myself -- eating well, getting enough exercise, and sleeping like I should. 

I realize I didn't dive into those last two...but...my blog time is up for the day!

We have an endo appointment after school, and I gotta run!
 

August 23 • Day 3: Challenge Accepted! Post Parenting isn’t all sunshine and ice cream – it’s hard. Write a post that delves into 3 challenges that you face as a parent.

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9 comments:

  1. Oh my...how tough. That breaks my heart! Good for you for telling that girl her words and actions were not kind! The expenses of diabetes that we have to bear or overwhelming at times.

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  2. oh wendy, i'm sitting here with tears in my eyes. yes, just yes. i can completely relate.

    when i was a kid, we didn't have much. when i was diagnosed with diabetes, my dad was unemployed and we had no health insurance. i can't even imagine how stressful those years were on my parents.

    i am grateful though, for having grown up without all the "stuff" that some of my peers had. It taught me to be grateful for what i had. and my mom never let me forget that we still had more than a lot of people.

    but you know what? my memories of those years are good. i don't remember being upset about what i didn't have. i remember taking good care of my toys. i remember spending countless hours playing with my brother and cousin, using whatever we could find in our pretend world. kids are great like that. there is no limit to their imagination.

    i know you wish you could give your girls more. but trust me, they will grow up to be thankful for being raised as you and Jason are raising them. They won't remember that they didn't have all the latest toys. They'll remember a home full of love, and parents who focused on kindness and grace.

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  3. Like Jess said-they will be thankful for your home full of love :) and the wonderful lessons that you teach them!
    Best wishes on your trip to the Endo..We go in a few weeks.

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  4. Way to go! You're a good mom for not letting your kids get tied up with materialistic things, for having a daughter willing to share her birthday money, and for being strong enough to get after that friend. Even if I dind't have to pay stupid insurance premiums and for insulin and test strips, I still don't think my kids would have those crazy American Girl expensive dolls and other things.

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  5. What I'm most impressed by is how your daughters value what they have. They're so lucky! And that will last them much longer that any newer toys!

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  6. The competition and comparing drives me insane!

    It's the love and caring and time together that the will remember. Sure, new things are nice, but it's not what makes a family a family.

    I'd rather have my kids alive and happy than dressed in the latest fashions and overrun with the newest gadgets!

    ...and with that said, we have some seriously cleaning out of the playroom to do!!

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  7. I appreciate that you've raised a girl who is willing to give away her birthday money to her sisters so they can all enjoy new dolls. That's something precious money can't buy.

    One of the dearest gifts I have is a mug my littlest sister (now 13) gave me last Christmas with a gift card she had saved from her last birthday. I think an unexpected doll from a sister is a way, way better present than an American girl doll.

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  8. Oh, Wendy, this post broke my heart...I'm so glad you defended your little Tiara and hope the other girl's comments didn't ruin it for her. You know, so many kids have American Girl dolls and don't even play with them...they're crazy expensive. I love that Sugar shared her birthday money with both girls, and that they cherished their toys so much. You're doing a great job raising your sweet girls, Wendy.

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While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.