THE STORY OF ONE FAMILY'S JOURNEY WITH TYPE 1 DIABETES AND CELIAC DISEASE.
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Showing posts with label animasvibe. Show all posts
Showing posts with label animasvibe. Show all posts

Tuesday, October 4, 2011

Claire Duncan: Awesome.

One day my little girl with Type 1 Diabetes is going to become a big girl with Type 1 Diabetes. Yes, my friends...one day she's going to grow up.  (GASP!)  As much as I'd like to keep her in the safe haven of my little nest, I have to admit that part of me is excited to see what adventures she will embark on.


I wonder if having diabetes will make her think twice before trying things that intrigue her.  I wonder if it won't.  Like all of my children, I wonder what her future will hold...and I'm honored to be a spectator as she grows into the person she is yet to become.


Recently, I had an opportunity to interview an amazing PWD who is living life to it's fullest, and pushing the limits when it comes to her life with diabetes.  From marathons to triathlons, it seems that NOTHING can stop Claire Duncan.  Not even swimming across the English Channel, facing 6 foot waves while managing an insulin pump, and getting entangled in seaweed...





Would you mind sharing a little about your T1D diagnosis story?

I was diagnosed with type 1 at the age of 23. I had just started my life as a freelance classical musician and It came as a complete shock. There is no history of diabetes in my family and I knew nothing about the condition and so I started to read as many books as I could find.  One common theme was the importance of exercise for weight-control, insulin sensitivity and avoidance of complications. I had no previous involvement with sports, but I started to run and built up one mile at a time. After about 18 months, I ran my first London Marathon to raise money for the British Diabetic Association.

When did you begin swimming, and how long did you train before swimming across the English Channel?

I started swimming at school but didn’t take it up again until I was about 30.  A few injuries meant I had to leave off running and so I started swimming and cycling, which lead to my participation in triathlon. I worked up through to Ironman distance, which meant regular 3 mile swim sessions in open water.

The challenge of the channel swim was to swim without a wetsuit, which I found quite daunting and very, very cold! I trained about 6 hours a week in the pool from January through until April. In April I moved to open water, starting in the Lido (100m open water pool) and moving to the lakes. I had to experiment with new ways to fuel. I used gatorade for pool swims and a product called isomaltulose for open water (this is a very low GI carb, which meant I could drink it before I got into the lake and it would slowly get into my system, so that I didn’t need to stash other forms of carbs inside my costume)!

I found the cold water hard to tolerate and I started in 55 deg water for 30 mins at a time. I found my blood sugars would rise due to the cold water shock and my hands would claw. I adjusted my basal rate to cope with the cold shock and solved the clawed hands by taping my fingers together for my longer swims! I swam with a “swim safety device” in the lakes, which is an inflatable dry-bag that I could keep hypo treatment in and use as a float if I felt hypo (I didn’t need to use it for this purpose but it made me feel more secure). I tried to swim 5 times a week with as many 6.00am starts as possible in order to experience the water at its coldest! My swims ranged between 1 and 2 hours each and sometimes I would swim twice in one day, so that I could simulate the idea of relay swimming.

What was the biggest challenge you faced during the swim?

There were 2 main challenges. The first was swimming in the big waves as the English channel is one of the busiest shipping lanes in the world, which meant we were surrounded by very big boats! A passing ferry would send a wake of 5 or 6 feet which would lift me high up in the water. The wave would then hit the support boat and bounce back and hit me again! I had swum in the harbour at Dover but I was not expecting the waves to be quite so big out at sea. After a couple of minutes I managed to calm down enough to swim with the waves and have the confidence not to try and fight over the top of them.

The other challenge was to try and keep my diabetes on an even keel. The adrenalin of the event made my blood sugars rise and I had to take small corrective bolus’ to compensate. I also had to swim harder than I had anticipated to get through the waves and to keep warm (the water was still around 55 deg). I also found that I didn’t want to eat as the swallowed seawater and rocking of the boat made me lose my appetite! Again, the joy of my Animas Vibe saved the day and a change of basal rates saved me from forced-feeding!

What's next on your list? 

I want to return to triathlon. A niggling back injury means that running is hard work but I want to do some shorter sprint distance races. I need to work on weight-training to build more power and this again is throwing up new challenges with balancing basal rates! I am planning to race the London Triathlon 2012, which should be exciting in our olympic year!

PS -- That's a pretty nice Animas Vibe you have there.  We can't get those in the U.S. yet.  How did you like it?

The Vibe is amazing! The CGM facility is a real bonus as I have not had the benefit of this before. Meter tests are great but it is only a result for that one moment in time. It has been so useful to join the dots and see trends during different activities and I have changed my basal setup based on the results. I took part in a triathlon with it the week after the channel swim and it was great to see what happens real-time during a race. It is also good to know that with the water-proof facility and the rubber skin, it is pretty bomb proof and I can get on with things without worrying about my pump.

    
Thanks for taking the time to share a little more about your amazing experience, Claire.  I'm completely inspired by your accomplishments, and excited to reaffirm that the sky's the limit for my daughter!

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Tuesday, August 2, 2011

Dive In!

At 2 am, take a dive into cold open water, full of jelly fish, debris, and heavy ship traffic.   Plan to swim a relay with a team of 6 people, and anticipate the entire event to take somewhere between 12 - 15 hours.  Weather and tide conditions will be unveiled along the journey, and the risk for hypothermia is very high.  You will not be permitted to wear anything that offers thermal or buoyancy protection. You might get seasick while out of the water, but a very precise nutrition plan will be in place, and you'll need to adhere to it regardless of how your stomach is feeling.  You cannot be assisted by another person or flotation device at any point while you're in the water, and an observer will be watching closely to make sure that all rules are followed to a T.


Now do all of that with Type 1 Diabetes.


On July 21, 2011 a 6 member relay team set off to cross the English Channel.  Three team members live with Type 1 Diabetes, and were sporting their Animas Vibe insulin pumps.  The team saw victory in 13 hours and 26 minutes!


I am honored to share this first person account from the team's Captain, Mark Blewitt.


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The Animas Channel Swim team of Matt Cox, Claire Duncan and myself, with type 1 diabetes plus Lorcan, Pawel and Boris started when we met up in the marina car park in the early hours of Thursday morning. It was a hive of activity and our specialist diabetes nurse, Vreni was there ready to accompany us on our challenge to cross the channel. Family and friends - Lucy, Deborah and Emma from Animas came down to see us off and the photographer was dispatched to record events for posterity. 

Description: Claire Duncan.MG4We started the swim just before 2am. It was dark and we needed two strong, experienced swimmers to lead us out to a good start. So out of the harbour, in the black of night, I was swimming first. I slipped into the inky sea with the aid of a “million candle” spotlight on the beach at Samphire Hoe, off we went. We learnt that seven escort boats were out at the same time meaning a busy day in the Channel. All had chosen our same start location with the hope of finishing at the Cap Gris Nez.

Once back on board after my opening stint, I managed to get a couple of hours sleep, whilst Lorcan and Pawel swam. Happily I woke up just in time to see Claire get into the water.  Claire looked very relaxed and had lovely effortless strokes - making good progress. Next into the water came Matt.  Matt was swimming breaststroke and the team were all in awe simply because as freestyle swimmers we all appreciate that swimming breaststroke is slower, colder and hence harder in open water.  At this point it should be noted that Matt’s namesake, Captain Matthew Webb swam breaststroke back in 1875 when he became the first person ever to swim the channel.  Little did Webb realize what he would be starting.

In between our turns in the water, we followed the team’s progress on the real time satellite maps, sending the Animas team on shore text, picture and location updates as often as possible.  We were making good progress and for a long while there was much speculation about whether we would finish in under twelve hours. 
During the course of the swim, the team on board the boat avidly listened to Claire and Vreni discuss diabetes management.  The non-type 1 members of the team know that channel swimming requires a fine balance between expending energy and intake of food whilst swimming.  The other team members showed their admiration that our metabolic condition does not stop us completing such challenges and competing in demanding sporting activities.

Matt was showing off his waterproof, real time Continuous Glucose Monitoring enabled, Animas Vibe pump, while Vreni lead a good discussion about what BGs actually are whilst Lorcan made good work of his second swim. We later had some unexpected excitement when Pawel came close to a very large, NYK container ship! Claire’s second swim was as relaxed as her first and Matt too executed a glide that Captain Webb himself would have been proud of.  As I prepared for my final spell in the water I knew this was the time to give it everything.
   
We arrived at Cap Gris Nez in 13hrs 26mins, a fantastic result! We’d done it!  We popped open a well earned bottle of champagne to celebrate and enjoyed a leisurely cruise back to Dover. 

We had a great time in the channel.  Thanks to Eddy Spelling and the Anastasia support boat crew.  Thanks to Jill our observer, Nick Adams and Kevin Murphy, Secretary of the Channel Swimming and Piloting federation (CSPF) for his patience in allowing us to make changes to the team at a late stage.  

I have had the pleasure of several relay swims over the years but I can honestly say this was one of the happiest I have been on.

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CONGRATS, ANIMAS TEAM!  
You are an inspiration and an incredible example that 
life with Type 1 doesn't have any limits!


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Thursday, June 2, 2011

Introducing the Animas Vibe!

Mark this date in history.  
IT HAS ARRIVED TO THE U.K.!!!!!
Animas Corporation is announcing today 
that they have received CE Mark approval for Animas Vibe.  


Animas® Vibe™ marks the first integrated product offering from Animas Corporation, makers of high-performance insulin pump technology and Dexcom, Inc., the leader in continuous glucose sensing technologies. Now approved in Europe, the product will initially be available to people living with diabetes in the United Kingdom, Germany, France, Italy and Sweden.
Animas® Vibe™ offers:
  • The latest technology available from Dexcom – Dexcom G4™, a tiny, round and flexible sensor with the smallest introducer needle as compared to Abbott Freestyle Navigator® and Medtronic Sof-Sensor®
  • Advanced high-contrast colour pump screen technology, that displays glucose trends with coloured arrows and lines showing where and how fast glucose levels are shifting
  • Dexcom sensor technology approved for up to seven days of wear, delivering more days of CGM data than those approved for a shorter duration
  • Waterproof durability up to 12 feet (3.6 metres) for 24 hours for the insulin pump, with a Dexcom G4™ Transmitter that is waterproof at 8 feet (2.4 metres) for 24 hours
  • Customizable alarms to indicate high and low glucose levels including a hypo-safety alarm fixed at 55 mg/dL (3.1mmol/L)
  • Low basal increment (0.025 U/hr) across all available ranges (0.025 U/hr to 25.00 U/hr) for precise dosing
  • Compatibility with Diasend® communications software, enabling patients to store, review and print both CGM and insulin pump data

You can check out the entire press release HERE.

Welcome to the family, Vibe.
We can't wait for the chance to get to know you better here in the U.S. :)

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While I'm happy to share our experiences with what works, and what doesn't work, for the management of Type 1 Diabetes and Celiac Disease in our house, please do not mistake anything you read here for medical advice. Decisions regarding your/your child's health care should be made only with the assistance of your medical care team. Use any information from this blog at your own risk.